A Frustrating Week

Posted by: david  :  Category: low vision, recovery

Well, it has been a week of total frustration.  Since mid-afternoon last Thursday, my vision has not been good.  Every day when I wake up I hope that it will be better, but then I open my eyes.  I’ve got just under three weeks until I visit the retina doc again, but at this point, it seems pretty obvious to me that the drops aren’t working.

I’m pretty sure I’ve been less than a joy to be around this past week.  I have just been miserable.  Even watching the Flyers advance to the cup finals brought me down.  I was there in 1997.  Not this time.  No point in going.  I’ll watch it on TV though.

I’m tired of not being able to find things and having to ask Eliz for help.  I’m tired of bumping into door jams because I go a little wide right.  I’m tired of waiting and hoping.  I want to move forward.

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Surgery No. 14 is Set

Posted by: david  :  Category: cataract, eye check

Over the past 10 days, I’ve been to three different doctors.  I’m starting to feel like my parents.  The most important of the three was two days ago.  My appointment was with Dr. Ayres, the one who did the partial cornea transplant (DSEK) in December 2008.  He thought that the cataract I’ve had in my left eye for sometime could be the culprit in my steadily worsening vision, but he sent me to Dr. Garg, a retina specialist, to rule out a retina issue.  Dr. Ruffini also thought I should consider having the cataract removed.

I was not looking forward to another surgery on my left eye until things started going downhill in July.  The problem was, none of the doctors knew what was causing the problem.  The cataract didn’t seem much worse than a few months earlier, if at all.  After going from one specialist to another, it was determined it wasn’t a glaucoma issue or a retina issue.  Lets just hope it is the cataract that is the issue.

I’m having the cataract removed on 15 April (so I guess I’ll send our taxes in early…)  There is also a possibility that I’ll have another DSEK (endothelial transplant.)  The donor endothelia will be in the OR, just in case.  Evidently, removing the cataract risks damaging my now 70 year old endothelia (along with the other common risks associated with this in most people and specific risks for unique individuals, such as myself, with other eye issues.)

I am disappointed that I have to wait that long for the surgery.  I joked with Dr. Ayres that I was ready to have it yanked on Wednesday.  I’m sure I have been less than pleasant to be around at home.  Tonight, I was home alone while Eliz, the kids, and a few of Jane’s friends went to see Alice in Wonderland — I miss going to the movies.  My frustration level is high and it takes me so long to do many basic things.  I am so ready to get the cataract out, it is hard not to get excited.  I’m trying to temper the excitement, since it only leads to disappointment after the surgery (at least after the last three.)

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Small Update on My Vision

Posted by: david  :  Category: business, vision status

I’ve been on the eye drop Xibrom for about 10 days now, along with an increase in the number of times per day I take Predforte (from 1x per day to 3x per day.)  Not only hasn’t this regimen helped, but my vision continues to deteriorate.  I visit the retina doc in about a month and the cornea doc a week later.  I’m beginning to wonder what kind of shape my vision will be in at that point.  It can’t be that my local ophthalmologist, the glaucoma specialist, cornea specialist, and retina specialist all missed something, could it?

I had a blood test last week to test for a whole bunch of things including Lyme  disease, diabetes.  According to the less than warm and fuzzy card I received in the mail on Saturday from my doctor’s office, everything was normal.  I have to tell you that I get more personalized mail from Publishers Clearing House.  I was kind of hoping there would be something in the blood test that might give a clue to my vision.  No luck.  I will call my doctor tomorrow to see if she can elaborate further on my test.

At this point, I’m also wondering about what to do about making a living.  I would love to try to continue to build ForYourSalon.com, but that has become increasingly more difficult for me to do.  I haven’t really worked for anyone but myself and Eliz since 1985.  What could I do?  More importantly, who would hire me?  I’m interested in your opinion.  Comment here or over at Facebook (www.facebook.com/davidbenj) if you are a friend.

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