It’s Not Cuckoo Bananas, But It’s Not Good Either

Posted by: david  :  Category: eye check, low vision

It has been a busy week, so I haven’t had a chance, until now, to post an update on last Fridays appointment with Dr. Garg, the retina specialist.  Unlike two weeks ago when I went to the glaucoma doc, this appointment was lacking most of the nonsense.  By the end of the appointment, I wasn’t any closer to an answer than I was since late April.

The appointment started with the typical questions from a tech about how my vision was doing, if I was experiencing any pain or discomfort, etc.  Then it was time to read the chart with my left eye.  The E was not a problem.  The next line, C and D, I could see, but if I didn’t remember it I might have said G instead of C.  The next line, which I now know is DHN, I couldn’t see.  With the pinholes, I was able to make out the H.

She moved on to my right eye.  Good news there, I can still tell if a light is off or on if it is a foot or less away from my eye…  Yippee.  She then put, or should I say shot, drops into both eyes.  God only knows how many, but it was sure more than one of each.  One is to numb the eye to get IOP (pressure) readings, while the other was to dilate my eye.  While she was doing this, she left the chart on, so I continued to try to read it.  She then used a hand-held device to get the IOP (Dr. Ayres calls this device a glorified random number generator.)  IOP was nine in the left and mid to upper 20s in the right.  The previous week at my glaucoma appointment, it was eight in the left and 13 in the right using the standard device (the one that you put your chin in, press your head against the bar, and look at the blue light.)

She waited a minute or two and then tried to get another number on the right eye.  Meanwhile, I’m still trying to read the 20/100 line on the chart.  She then said I was cheating by continuing to attempt to read the line.  Eliz didn’t like what she said and asked how I was cheating if I was just trying to read the chart.  While the lady answered Eliz, I had my hand in front of my eye, trying to simulate the pinholes while still trying to read the line.  Hey, if you don’t want me to keep trying, shut the effing thing off!  As we got up to move to the next exam room, I glanced behind the chair where the chart is bounced off of a mirror and saw that the line was DHN.  Now maybe that was cheating.  How would that help me though?  It’s not like I could get a drivers license for reading the 20/100 line.

In the next room, Dr. Garg came in and asked some questions and then had a look.  He then told me that the only thing left to try were injections in the eye.  Before we try that though, he wanted to get another OCT scan to make sure the risk/reward was worth the attempt (actually, attempts, as it would take several injections over the course of a few months for it to work.)

Tom gave me the OCT scan a few minutes later, then we headed to another exam room.  After a minute or two, Dr. Garg came in and had a look at the scan.  He said that it wouldn’t be worth trying the injections as there was only a 15% chance of them helping me see better.  At that point, I said, “Okay, so there isn’t really anything you can do for me?”  “That’s right,” he replied.  He told me I could come back in five months (why?,) or sooner if I was having any other problems.  He did tell me to make sure that I see him, Dr. Ayres, Dr. Pro, or Dr. Ruffini frequently to get IOP readings.  Seems like ‘roids that I take 2x per day in the left eye could cause the pressure to rise.  Maybe it’s time to see Dr. House, Dr. Riviera, or Oscar Goldman…

So while my vision is not cuckoo bananas (a technical term Dr. Garg used at my last appointment in June,) it’s not good either.  So what do I do now?  Some days, my vision is better than others.  Today, for example, it sucked big time (I suppose that is a technical term I picked up somewhere along the way.)  Maybe I’ll see a little better tomorrow.  I’m not holding my breathe (but would if it would help…)

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It’s Been a Few Weeks, Not Much New

Posted by: david  :  Category: Weight Loss, family, low vision, recovery, vision status

I haven’t posted an update for about three weeks.  In that time, my vision still sucks and I’m wondering if I made the right choice to have the surgery.  I visited the retina specialist on Tuesday and was told that there isn’t much difference on the macular edema from the last visit about a month ago (and that was only slightly different from earlier this year.)  Seems a bit odd since during my appointment in May, he was able to point out the differences with my OCT scan then and the one earlier this year.  I was also told that I had a bit of swelling in my cornea (cornea edema.)  I don’t recall if that was an issue at my last cornea doc visit, but I’m scheduled to visit him this coming Tuesday (22 June,) so I’ll ask.  At this point, my vision seems to fluctuate between slightly better than before the surgery to worse than before the surgery.

It is so frustrating to me that nothing can be done to get me back to where I was just days after the surgery.  For about 10 days from 18 April, my vision was the best it had been in years.  Seems now like that was a cruel tease.  I’m getting tired of running to the doctors multiple times per month and not making progress.

In other news, Jacob is in Japan with a group of students from Westtown.  The last few days they’ve stayed in Kyoto and taken day trips by rail to other cities and sites (Hiroshima, Miyagima-guchi, Miyagima, Kinkaku-ji.)  Sunday, they move on to Tokyo where they meet their host families and prepare for a week at Tamagawa, Westtown’s sister school in Japan.  The family Jake is staying with has a boy a year or two younger than Jake and seems to live a bit of distance away from the school.  Eliz and I hope Jake can manage the train transfers…

Jane is looking forward to meeting her favorite band All Time Low on Sunday at meet and greet during The Bamboozle Roadshow.  Monday, she heads to softball camp at Villanova for a week.  She is also doing two weeks at an overnight camp at Bryn Mawr College in July and going to the Outer Banks in August with Margaret, Meghan, and Chris.  Did I mention she spent yesterday (Thursday) in New York with her friend Rachel?

Since Eliz and Jane won’t be here on Sunday, I’m planning a day of football…  Well, at least the last two games (Azzurri/All Whites and Brazil/Ivory Coast (sorry Slovakia/Paraguay, I’m not rolling out of bed at 7.30am.)  So, if you want to watch some footie, come on over!

Finally, I’ve lost another pound, which I am trying not to do.  I’m trying to maintain 163 pounds, but have been between 161 and 162 the last couple of days.  I’ve bumped to 1800 calories per day (from 1700) to try not to lose any additional weight.  It’s been tough this week, because we’ve eaten out four times and I’ve had to estimate my calories once and calculate my calories after the fact another time.  By the time I added ‘em up, I was short by 200 calories (ate 1600 calories) and it was too late to have anything else if I wanted to go to sleep by 2.00am.  At 161, I’m down 73 pounds since I started on 10 December 2009.

More next week, after my cornea doc appointment.

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Wow, I was Wrong!

Posted by: david  :  Category: Weight Loss, eye check, low vision, recovery

I say that like it doesn’t happen often.  Today I had an appointment to see Dr. Garg, the retina specialist I visited several times in January and February.  As far as I was concerned, he was my last hope of finding why I was having difficulty seeing over the last couple of weeks, after noticeably better sight after the cataract extraction on 15 April.  I mentioned in this space last week that I didn’t think he’d spot anything.  Fortunately, I was wrong!

After having difficulty reading the 20/200 line (their chart is different than all the others, the 20/200 line is CD not SL) I had my IOP taken (9 in the left, 28 in the right – that is high, but since there is no pain and virtually no sight, who cares,) I was given drops to dilate my eyes.  After a 10-15 minute wait, we went to another examination room.  Dr. Garg came in and asked me about the trouble I’ve been having and the surgery, then had a look.  He noticed something and said he would like me to have an OCT scan.  After another short wait, Tom called me in and did the OCT scan.  After another short wait, we went into a different exam room.

Dr. Garg came in and immediately said that I have Macular Edema.  I was pretty happy for a second.  I thought, “Wow, he actually found something!”  Then I though, “Uh oh, now what?”  I asked the doctor how it is treated and then I was happy again.  Eye drops (the name escapes me at the moment, but I think it begins with a D) four times per day.  That is easy enough.  He then showed Eliz and I (between my dilated eye and poor vision, I couldn’t really see much) the OCT scan from today and the one from 15 January.  He pointed out the difference in the one today, which Eliz was able to see.  After about two hours, we were done.  I go back in four weeks.

Today was the first of three doctor’s appointments for the week.  Tomorrow, I go to my general practitioner for a check-up.  Perfect timing for me to visit her, as I’ve had a sore throat for about eight or nine days.  I’m interested to see what she says about my weight.  I was in the mid-180’s the last time I was there in March.  I was 168 this morning.  I know many of you have been asking about how I dropped a total of 66 pounds since 10 December 2009 and want to know my secrets.  The short answer is 1500 calories a day and I weigh everything I eat at home (unless it is packaged, then I use the nutritional info on the package.)  When we’re out, I use the restaurant’s own nutritional info.  If a restaurant doesn’t provide the info, then I calculate it.  If I can’t calculate it, we don’t eat there.  Do you hear me Bertucci’s?  I’ve kept a food journal since February and I’ll post it soon (I wanted to do it a couple of weeks ago, but my vision issues got in the way.)  Friday, I visit Dr. Ayres for another post op check.

Lastly tonight, I went to Anthem Institute (formerly Chubb Institute) for a Graphic Design Advisory Board meeting.  It was both good and bad.  Good because I love talking about graphic design work, the industry, and the curriculum at the school.  They’re making some positive changes there that will give students a deeper design knowledge that should translate into being better prepared to land a job once they graduate.  The bad part about tonight was talking about new version of programs like Photoshop, Illustrator, InDesign, and Flash.  How is that bad?  I so want to use them, start shooting pictures again, shooting videos (and editing them,) and cool stuff like that, but my vision is not cooperating.  Maybe I’ll be able to get back to it once the drops work their magic…

Oh, and one last thing.  Really.  The parent daughter softball game is Thursday afternoon at Friends Central.  I am hoping to get an at-bat.  I will most likely strike out, if given the okay to hit, but I want to try.  I’ll let you know how it goes.  Fortunately, Lankenau Hospital is literally right around the corner…

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