It is so frustrating to me that nothing can be done to get me back to where I was just days after the surgery.  For about 10 days from 18 April, my vision was the best it had been in years.  Seems now like that was a cruel tease.  I’m getting tired of running to the doctors multiple times per month and not making progress.

In other news, Jacob is in Japan with a group of students from Westtown.  The last few days they’ve stayed in Kyoto and taken day trips by rail to other cities and sites (Hiroshima, Miyagima-guchi, Miyagima, Kinkaku-ji.)  Sunday, they move on to Tokyo where they meet their host families and prepare for a week at Tamagawa, Westtown’s sister school in Japan.  The family Jake is staying with has a boy a year or two younger than Jake and seems to live a bit of distance away from the school.  Eliz and I hope Jake can manage the train transfers…

Jane is looking forward to meeting her favorite band All Time Low on Sunday at meet and greet during The Bamboozle Roadshow.  Monday, she heads to softball camp at Villanova for a week.  She is also doing two weeks at an overnight camp at Bryn Mawr College in July and going to the Outer Banks in August with Margaret, Meghan, and Chris.  Did I mention she spent yesterday (Thursday) in New York with her friend Rachel?

Since Eliz and Jane won’t be here on Sunday, I’m planning a day of football…  Well, at least the last two games (Azzurri/All Whites and Brazil/Ivory Coast (sorry Slovakia/Paraguay, I’m not rolling out of bed at 7.30am.)  So, if you want to watch some footie, come on over!

Finally, I’ve lost another pound, which I am trying not to do.  I’m trying to maintain 163 pounds, but have been between 161 and 162 the last couple of days.  I’ve bumped to 1800 calories per day (from 1700) to try not to lose any additional weight.  It’s been tough this week, because we’ve eaten out four times and I’ve had to estimate my calories once and calculate my calories after the fact another time.  By the time I added ‘em up, I was short by 200 calories (ate 1600 calories) and it was too late to have anything else if I wanted to go to sleep by 2.00am.  At 161, I’m down 73 pounds since I started on 10 December 2009.

More next week, after my cornea doc appointment.

It’s Been a Few Weeks, Not Much New is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: bamboozle roadshow, Brazil, bryn mawr college, Chris, cornea, Hiroshima, Ivory Coast, Jacob, Jake, Jane, Japan, kinkaku, Kyoto, macular edema, Margaret, Meghan, New York, Rachel, retina specialist, surgery, time, Tokyo, vision, week, Whites

Again, I was unable to read any of it until I flipped the pinhole cover down.  Like magic, the E appeared.  I then said I know the next line is S and L, but I can’t see it.  She told me I was wrong.  What!?!  It’s not S and L.  Now I had to know.  I moved the pinholes all around until it was as clear as it was going to be for me.  I guessed O for the second letter.  Try again.  D!, I said next.  That was it.  The first letter (don’t ask me why I don’t read them in order) looked like it could be an O, G, or C.  I guessed G in hopes of it being the GD line.  No such luck.  C was my next try and that was it.  Kelly mentioned that this chart is made up mostly of similar letters that repeat often, so my usual deduction that I’ve got a one in 26 chance which increases with every letter doesn’t work.  I’m actually going to have to read them.

Once I was finished with the eye chart, Kelly took us to another waiting room, where Eliz read me the story of the Penn State mascot in a recent addition to ESPN magazine.  Before we could finish, we were called to see the doctor.  Dr. Garg asked me about my issues and mentioned that he had spoken to Dr. Pro about me.  He explained that even though my right eye doesn’t do much he still wanted to check it out.  Since my cornea is really cloudy and I have a pretty mature cataract in it, they would use an ultrasound to have a look.  He also explained a test they’d run on my left eye, to check for changes in the macular pigmentation.  Dye is injected via an IV (that’s iv, not roman numeral for 4) and pictures are taken.  After he mentioned the dye, I remembered that I had this test before.  The images are wicked.  Unfortunately, I didn’t have a flash drive on me to get the images.

I went into another exam room to have the ultrasound and then back to the second waiting room to wait on the angiography.  After a 10 minute wait, Tom called me back to have the angiography.  He took a couple of images of my eye before putting the dye in.  The dye made me feel nauseous for about a minute.  Tom took more images and left to give someone an OCT scan (which took him all of five minutes — about 1000x faster than mine took on Monday.)  He then came back into the room I was in to get two more pictures.

I waited in the angiography room for a few minutes until they called me to see the doctor again.  He explained what he thought was going on.  He increased my use of one drop to three times per day and added another drop to try and get the swelling down in the retina and cornea.  He suggested that I wait on having the cataract removed until I see him again in six weeks.

After three hours, we were out of there.  We headed down City Ave to pick up Jane from school.  She called me just before the ultrasound and said she wasn’t feeling well, which I knew when she left for school.  I also knew we’d be right down the street from her and could pick her up after the appointment if she couldn’t last the day at school.

After I spent an hour, or so, at home (at which time I found out my mom had gone into the hospital — more on that below,) we headed over to Viva Salon in Springfield.  They’ve been having a problem with a hydraulic base that was still under warranty.  We swapped out the bad base for the good one that has been in our car since the move and headed to my next eye appointment.

I had scheduled this appointment with John Ruffini, another NPHS alum, to talk to him about the cataract surgery (and before I knew of any retina issues.)  He had a look at my still dilated left eye and we discussed my options and the problems that could arise from taking out the cataract.  He also thought it was best to see how the eye reacts to the increased drops and new drop.  I have put off scheduling the cataract surgery because of moving the business and the fact that it could undo the partial cornea transplant.  My left eye has endured seven operations over the years, with another one imminent.  I’m tired of going through these procedures and the recovery with mediocre success.  The risk/reward factor isn’t great, though I would do anything to preserve any sight I still have.

After leaving John Ruffini’s office, we made a delivery in Holmes and stopped by a salon in Milmont Park to look at a styling chair that needs replacing.  We returned home at about 4:00 pm and had an alarm company tech waiting to convert our system.  It took him about two hours (the whole story will have to wait for another time.)

We were finally able to head to Riddle to visit my mom.  She went to the hospital at around 8:00 am this morning because she was having shortness of breath and chest pains.  The doctor wanted to keep her overnight for observation.  She seems to be okay, though uncomfortable because of the shingles.  We are hoping to pick her up and take her home tomorrow.

A Long Day is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: 1964, C.  I, cataract, chart, congenital glaucoma, cornea, Dr. Ayers, Dr. Garg, Dr. Pro, Dr. Ruffini, Eliz, espn magazine, eye, Holmes, Jane, John Ruffini, Kelly, L.  Now, Media, Milmont Park, nether providence, Penn State, penn state mascot, Providence, Queen, queen of babylon, retina, retina specialist, Riddle, room, Rose Garden, Springfield, Strath Haven, StrathHaven, swelling, Teavana, Tom, Viva Salon, Wallingford, wills eye

Dr. Pro recommended a couple of retina specialists at Wills Eye, who also have an office at the Pagoda Building in Bala Cynwyd.  It was too late in the day to get an appointment today, so I’ll call them tomorrow and set something up.  I’d like to get something quickly to stop further decrease in my vision.  I already have an appointment with my local ophthalmologist, John Ruffini, on Friday and will discuss the scan, my options, and the cataract (which was the original reason I made the appointment.)

Time to See a Retina Specialist is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: appointment, bala cynwyd, call, cataract, congenital glaucoma, cornea, cornea transplant, Dr. Ayers, Dr. Pro, Dr. Ruffini, eye, iop, John Ruffini, late in the day, retina, ruffini, swelling, wills eye

My OCT scan from 11 Jan 2010.

Image of My OCT Scan is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: bellies, butts, caption, cataract, cornea, Dr. Pro, glaucoma, image, mine, New York, OCT, pagoda building, retina, update, vitreous retina, wills eye

My good fortune was that the machine was brand spanking new and both Irene and Todd had not yet mastered it.  Irene couldn’t get a good set of images and kept asking me if I was diabetic, which I am not.  She then said that the cataract in that eye must be really dense, because they couldn’t get a clear image.  She then decided to dilate my eye.  (This test was only for the left eye.  The right is waiting for the Six Million Dollar Man eye and I haven’t spotted those at Radio Shack yet.)  Dr. Pro had asked that the eye be dilated, but Irene thought it wasn’t necessary at the beginning.  While my pupil was dilating, Irene stepped out of the room.  Todd, Eliz, and I talked about the machine.  I asked Todd a question and didn’t get a response.  Eliz then answered for him.  Seems he didn’t realize I couldn’t see him and he nodded yes to answer my question.  After about 10 minutes, Irene walked back in, but Todd wanted his turn on the machine, so Irene coached him.  He couldn’t get a good image either.  Irene’s turn again.

After about 10 to 15 minutes of trying, we were asked to go wait in another waiting area.  We only waited there a couple of minutes and then it was back into the hot seat for me (and I didn’t stumble in the room this time since my eye was dilated…)  Finally, Irene was able to get the correct images the doctor ordered.  I asked if I could have one put on my flash drive.  Irene said no, but said she’d print one out.  As she looked through all the images, she realized that they weren’t that good.  She asked if she could try again on getting a good image.  At this point, either Eliz or I mentioned the Endothelial transplant from December 2008.  She then said that might be why she couldn’t get a good image.  Whatever.  She got some images she was happy with and printed one out for me…  In black and white!  The doctor will have a look in a day or two.  I’ll call on Wednesday to see what the story is.

I’ve got a scanner issue that is stopping me from uploading the image.  Hopefully I’ll figure it out tomorrow and have the image up here then.  I know it doesn’t look like this image:

OCT demonstrating normal retinal architecture.

My OCT scan from 11 Jan 2010.

So now I have to wait to hear from the doctor.  My image is a bit more “hilly” than the image above.  I’m hopeful this is the reason for my latest issue.  I also hope this can be fixed.

OCT Retina Test is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: adventure today, caption, cataract, cornea, Dr. Pro, Eliz, eye, glaucoma, good fortune, image, Irene, machine, OCT, retina, room, surveillance camera, thin red line, Todd, waiting area, wills eye

When I had the surgery, I wondered how well I would see in the days and months afterwards.  As I’ve mentioned in other posts, most of my doctors were pretty optimistic.  They all agreed that unless something went wrong, I’d get back to 20/200.  Some thought I could get to 20/100 or even better.  One year later and my vision is at 20/400.

Dreams of reading a newspaper, magazine, purchase orders, invoices (those that I create to send to a customer, not those sent by a vendor — Eliz can read those,) mail, and anything else printed on paper never came true.  Wild fantasies of tossing a softball around with Jane, hitting a tennis ball around with Jake, going to a Phillies, Flyers, or Eagles game (you know, I’ve never been to the Link) and enjoying it have all been placed back deep in the corner of my mind next to being a rock star, an action-hero actor, or a top chef.

As I’ve previously posted, none of my ophthalmologists know why my vision has deteriorated since June.  Maybe it’s from the mold at our business (we’ll know shortly, because we are vacating or current building very shortly.)  Maybe it’s age related.  Maybe it’s because I’ve gained weight.  Maybe it’s just supposed to be this way.

I have an appointment on 9 December with the cornea specialist.  Perhaps he will have an answer better than the last time I saw him, when he told me that he didn’t know what it was and it would be a hard fix.  I’ll post sometime after the appointment and let you know.

I do plenty of complaining, whining, and ranting here.  One thing I’m not sure I’ve ever done is thank the donor of the endothelia that now resides on the fifth layer of my cornea.  I don’t know who he or she was.  I only know that the donor was 69 years old when they died and without their cornea (even though they only used the endothelia, the whole cornea was available to me) I would almost certainly be much worse off.  Thank you sir/madam, I do appreciate your gift.

One Year Later is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: action hero, body, cornea, cornea specialist, cornea transplant, corneal transplant, DSAEK procedure, endothelia, endothelial, God, Jake, Jane, layer, ophthalmologists, part, partial thickness, surgery, transplant

There was a great deal of promise when I turned 44 last November.  I was having a very tough time seeing and surgery was scheduled for early December for a full cornea transplant or a partial cornea transplant (where only the endothelia is swapped out.)  The hope was for the endothelial transplant, but that was to be determined during surgery.  The surgeon was pretty optimistic that my vision would get to 20/100 or a tad bit better.

The result was the easier surgery, replacing only the endothelia, but vision that peaked at 20/200 in spring and then started going the wrong way by July.  I can now see 20/400 in my good eye and none of my ophthalmologists can tell me what the problem is now.  So the hopes and dreams from last Thanksgiving have been replaced by frustration and concern this year.

Then there is the business.  When I turned 44, I had absolutely no idea what was going to become of our business, Salon Supplies + Interiors (see the two previous paragraphs.)  Our lease at 1010 MacDade with the ganif (I am being too kind) was set to expire on 5 February.  Once my doctor informed me that the surgery was “a success,” we tried to negotiate a one year lease at a lower rent.  We were paying $3750 in rent, $1200 in taxes, and about $1100 for utilities on average per month.  (Utilities varied from $800 to $2000 and were billed by the ganif, not Peco.)

Now the question was to move or close.  I really wanted to launch ForYourSalon.com, which was suffering from massive delays (uh, yeah, my sight issues.)  Thankfully, Ken came on-board full time and got it moving again.  We looked at properties from the end of December to the third week in January, when we found our current location.  It was perfect!  It had a drive-in bay, a loading dock bay, and nearly 8,000 square feet.  This place could accommodate our cabinet shop, used equipment department, new equipment showroom, and beauty supplies department.  And the price was right too: $2,500 per month rent, no CAM charges, no taxes, and a utility bill that averages about $575 per month (highest was about $675 and lowest was about $350.)

We boxed all the supplies and moved everything in about five days.  We had everything setup in the new place in about three weeks, though we only closed for three days during the move (the last day at the old location and the first two days at the new location.)  The first few days at the new place were somewhat painful for me since we had so many different workers (moving temps, electricians, etc.)  While my staff knew to keep things off the floor and away from traffic areas, the others did not.  I walked into metal piping that was hanging out of the electricians truck by about three feet (the truck was parked in the warehouse.)  It literally brought me to my knees.

So our predicament is very similar this year.  Different building, different issues, with a move imminent.  This year there is greater worry.  The conditions of our “perfect” space began to worsen with every drop of rain that fell at the end of June.  As water poured in every day or two over the summer, the mold and fungus began thriving.  Samples taken by a mold remediation company in early November showed levels much higher than they should be.  We will be out of the space within weeks (hopefully two weeks.)

Besides my sight, my general health hasn’t been good over the past year.  I’ve had sinusitis multiple times since early summer.  Hmmm, I wonder if it has to do with the mold…  I am looking forward to evacuating that building and seeing if my health (and Eliz’s too) rebounds.

The immortal words of a great philosopher are always in the back of my mind, “It’s always something.  If it’s not one thing, it’s another…”  That said, I’m looking forward to a better year.  I’ll let you know right after I turn 46.

Goodbye 44! is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: 2012, 44, 45, beauty supplies, cornea, cornea transplant, day, endothelia, full, good eye, hopes and dreams, ken, Mold, November, ophthalmologists, perfect, presidential, presidential election, remediation, rent, salon supplies, surgery, taxes, transplant, week in january, Year

After about 10 minutes, we were called back.  Christy asked about any problems, pains, etc.  She wrote down everything I said.  Then it was time for the eye chart.  Big E, that’s all I saw and even that wasn’t clear.  I could barely see that there were characters on the next line.  20/400, just like at the glaucoma study and Dr. Ruffini’s office.  Christy then flipped the pin holes down.  I saw the next line (CD, 20/200) and a letter from the next line!  The C& D (from the 20/200 line) showed up just like those ballplayers at Ray’s cornfield did for Mark.  For fun, she shined a light at my right eye.  I saw the light…  Hold the applause, please.  Dr. Pro wasn’t quite ready to see me yet, so back out into the waiting area.  We’re back to reading recipes like it’s 1999.  Sad thing is, I would have been able to read those recipes back then…

After five minutes or so, we went into another examination room.  First in was Dr. Katz, who, I believe, is doing a Fellowship at Wills.  He was very friendly and joked with Eliz and I.  He checked the IOP in both eyes (18 in the right and six in the left.)  He also looked around both eyes and mentioned that he saw the “button” in my left eye (the new part of the cornea that was transplanted last December.)  Dr. Pro came had a look and asked Dr. Katz for a quick evaluation while he (Dr. Pro) continued to checkout my eyes.

Dr. Katz stated that he got an 18 for my right eye, but didn’t know how accurate that was.  Dr. Pro said that it is hard to get a good (accurate) reading from that eye because of all the problems with it.  The cornea is thick with some scarring and there is a cataract that is pretty mature in there as well.  He then tried using a different device to get the IOP in the right eye.  From what I saw of it, it looked like one of those digital cooking thermometers.  Since the numbing drops were beginning to wear off, it didn’t feel too good being jabbed into my eye.  Dr. Pro said that the numbers were all over the place and that some of the readings were around 30.  (Perhaps my eye was simply picking the Powerball or MegaMillion numbers for the next drawing.  If Dr. Pro isn’t there for my next appointment in January, I’ll know…)

Dr. Pro then talked about the fold in the left cornea.  He told me to call and give Dr. Ayers (the cornea doc) a heads up.  He also told me to take the Pred Forte drops four times per day until I see Dr. Ayers at the end of this month.  He told me he didn’t know the cause for the fold and if it could be repaired without surgery.  Dr. Ayers would be able to tell me more.  Dr. Pro then began discussing my right eye.  He said it might be time for a trab.  I asked him why.  He thought the pressure was kind of high and I did have some vision in that eye and we should try and save it.  I mentioned that I had been told in the past by Dr. Wilson and Dr. Starer (R.I.P.) that any glaucoma surgery should be accompanied by cataract removal and a new (okay, actually it’s used, but new to me…) cornea.  I was a bit surprised by the suggestion of the trab recommendation.  My eye has very little pain usually (though, at that moment I could still feel where the meat thermometer was jabbed into it.)  Saying that I have some vision in that eye is like saying the homeless guy sleeping on the street with 18 cents in his pocket has money.  Is it true yes.  Is the sight meaningful?  No.  I then mentioned to Dr. Pro that I would be game for any type of experimental surgery on that eye.  After some additional discussion, Dr. Pro told me he just wanted me to know my options.

As we were waiting to checkout at the front desk, Eliz mentioned that my attitude had changed when he talked about surgery on my right eye.  I asked her if it was bad and she said that I was not disrespectful, but she could tell I wasn’t happy.  I wasn’t happy at all.  I still didn’t know what the problem was with my left eye and didn’t really care about how we can make my right eye minutely better.  I was extremely disappointed and frustrated.  When I got home that night, I began searching for answers on the fold.  I posted some questions in one of the yahoo groups I belong to, hoping for an answer.  As of this writing, I’ve got nothing yet.  I’ll keep you posted…  The best thing to come from the appointment, besides the recipes, was the fact that I didn’t notice any kids waiting to be seen.

Glaucoma Specialist is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: appointment, c amp, Christy, cornea, Dr. Ayers, Dr. Katz, Dr. Pro, Dr. Ruffini, Dr. Starer, Dr. Wilson, Eliz, eye, eye chart, family gatherings, glaucoma, glaucoma specialist, I.  He, magazine, Mark, pin holes, R.I.P, Ray

I had also hoped to stop by ASB (Associated Services for the Blind and Visually Impaired – asb.org) tomorrow, as they are just across Walnut Street from Wills Eye.  I didn’t hear back from them, so I don’t know if we stop in.  I don’t get a chance to get out of the store too often, so we’ve got to make the most of it.  Jane and Margaret are covering for Eliz and I tomorrow, by the way.  I will post tomorrow or over the weekend on how he appointment goes.

Wills Eye Tomorrow is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: appointment, asb.org, Associated Services for the Blind and Visually Impaired, black eye, clouding, cornea, cornea specialist, December, Dr. Ayers, Dr. Pro, Dr. Ruffini, Eliz, endothelia, eye, glaucoma specialist, Jane, Margaret, ruffini, specialist, tomorrow, Walnut Street, wills eye

Okay, enough about other stuff.  I started this blog to rant about my No. 1 frustration: my eye sight.  Here’s where I’m at now…  I am able to read on the computer with reading glasses (I never in my life thought I’d be able to walk into a drug store and purchase glasses for under $20…)  I still have to enlarge the text two or three Apple +’s, but I’ve kind of accepted it.  The readers also help me see larger printed materials (newspaper headlines, etc.)  Officially, my vision still stands at 20/200 in my left eye and hand motion at a foot in the right.  (My right eye has been a lost cause since the day I was born, so I’m STILL ready and willing to take part in some sort of crazy experiment to help me see with it.)  It doesn’t seem likely that my vision will improve much more than where it is currently.  I have been refracted twice with virtually no improvement.  We will try again in a month or two.  I am not happy.

Here comes the rant…
Three of my thirteen eye surgeries have occurred since I was 15 (1980, 2003, 2008.)  Before each one, I was very excited to have the procedures (two trabs, one partial cornea transplant) done because I thought my vision would be improved greatly.  The 1980 trab was successful and it didn’t reduce my vision (though it didn’t improve it either.)  The 2003 trab was successful in reducing my IOP, but I went from reading the 20/100 line to the 20/200 line.  The 2008 partial cornea transplant was successful in removing the bad endothelia and replacing it with a good (but 25 years older than me) endothelia.  My vision is no longer cloudy, but I still can only read the 20/200 line.  It looks clearer than it did a year ago, but I still have trouble seeing TV, movies, sporting events, peoples faces, and just about anything else.  I was hoping to get to 20/100 and from what both my cornea specialist and my local ophth said, it seemed possible.  I had great fantasies of having a catch with my daughter as she worked on her softball pitching mechanics, throwing a football around with whoever, going to a Phillies game, Flyers game, Eagles game, or soccer friendly between two of Europe’s best teams and actually see what is going on.  I’d take tons of pictures with my camera and mess around with them in Photoshop.  All of those will have to wait, if I can ever do it at all.  My biggest problem is trying to get past the frustration and find something else that I do like to do.  I just can’t seem to move forward.  Got any ideas?

Six Months Later is a post from: ICantCU.com | © 2009, iCantCU.com. All Rights Reserved.

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Post tags: cornea, Europe, eye, game, hand motion, ken, line, reading glasses, salon supplies, school payroll, three apple, vision